Allergies, Children, Family, Health, Parenthood

FPIES and Food Allergy Awareness

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Most people are aware of some food allergies, but most have never even heard of FPIES. It can be hard and lonely sometimes Mama… but hang in there. Remember, you aren’t doing this alone.

What Is FPIES?

Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract.  Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests.  In fact, the negative allergy evaluation may delay the diagnosis and take the focus off the food that is actually causing the problem.

FPIES is a non-IgE food allergy, which unlike classic food allergy, can’t be diagnosed with a regular food allergy tests such as skin prick test (SPT) or blood test that measure food IgE antibodies (RAST).  These tests are helpful to identify triggers for typical food allergies but are characteristically negative in FPIES.  An FPIES diagnosis is usually made by considering the history of the characteristic symptoms and exclusion of various alternative illnesses.

FPIES reactions can be severe so it is important to get the necessary medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock.  Although some doctors prescribe epinephrine to stabilize blood pressure before medical treatment, the main therapy is to get intravenous fluids; also steroids can be used to calm the immune reaction. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your child’s triggers, may be helpful.

FPIES may be rare, but it’s worth the share.
 
For more information on FPIES visit these sites below:
 
http://fpiesfoundation.org/
https://www.fpies.org/
 
https://www.rarediseaseday.org/association/140
For a glimpse into what it’s like raising a child with FPIES, see the Busy Mom Day Episode below and read previous post of mine, Our Kids, Allergies, FPIES, and Eczema

 

Busy Mom Monday- FPIES & Food Allergy Awareness

 

 

Products We Have Found Helpful


 

 

 

 

 

 

 

KidScents MightyVites Wholefood Supplement

 

 

 

 

 

 

 

 

Orgain Organic Protein Milk

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